Treatments for Peroxisome Biogenesis Disorders is only the beginning.
The work being done by PBD Project is going to help millions of people.
Our mission is to research and fund innovative therapies,as well as treatment options, expert care, and information to families affected by this disease. We believe in the power of collaboration and communication and our goal is to establish a network of knowledge that will push research forward to find therapies for PBD patients.
PBD Project was first born on October 2017, even if we were unaware of it at the time. That is the day Diego was born. We counted 10 fingers, we checked his breath. Everything seemed to be in order.
PBD Project was then born in the summer of 2019, when we first heard “Peroxisome Biogenesis Disorder” for the first time. Little did we know we would end up being armchair experts on PBDs and PEX10.
PBD Project is also born today and tomorrow, and every time it reaches a new parent, new medical expert and a new research milestone.
By bringing together exceptional talent from around the world, we will find a more efficient approach that will eventually lead to scientific advancements and ultimately a cure.
We as parents, will do anything to provide Diego, and patients like him, with the opportunity to a life they deserve.
Please email email@example.com if you are interested to participate!
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